Listing progress update

The medicine status website was updated this week and shows that step 5 of 8 is underway. Whilst there are multiple parts within each step, the progress is underwhelming for those who are seriously unwell now.

Some of these children are in hospital right now and urgently need access to Trikafta. Every day matters for those with CF – Vertex Pharmaceuticals and Mark Butler MP please move faster and list without delay.

#TrikaftaNow#CFCantWait