Author: YTT Admin
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Maddi’s story
As we wait for the outcome on Friday, we thought we’d share Maddi’s heartwarming story. Maddi was 11 years old with a lung function of 24%, under palliative care. She was on Insulin, Bipap, overnight feeds, many medications and not able to receive a transplant. She missed out on a lot of school and activities…
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Aaliyah’s story
Aaliyah is fortunate to have compassionate use of Trikafta. All of last year she was very unwell. She would finish hospital admission and a few weeks later, sick again. Her lung function dropped below 40% in June and she started on oxygen at night. Trikafta has been a miracle for us. Since starting on Trikafta…
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Trikafta for children aged 6-11 is on the November PBAC agenda!
This is great news for the approx. 500 children waiting for Trikafta around Australia. Our children with Cystic Fibrosis might look healthy now but inside they are already fighting an immense battle. Together we can let the PBAC know just how important it is that these children and families hear good news in 2022! You…
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Trikafta on the PBS for 12+
~ Trikafta is on the PBS as of today!! ~ This wouldn’t have happened without the amazing scientists at Vertex. Funding from the Cystic Fibrosis Foundation helped Vertex Pharmaceuticals to develop the first CFTR modulator, Kalydeco, by testing 228,000 compounds! Since then Orkambi, Symdeko and Trikafta have been developed, meaning there is a highly effective…